Belated

Why write now when I haven't blogged in almost two months? A Boy, of course. I'll get there in a moment...

I never wrote about Thanksgiving, how much we had to be thankful this year. My cousin adopted a child. My other cousins are pregnant. Amber stopped by and she's all kinds of pregnant, too. I've created an actual business that's started to make actual money that I enjoy and works extremely well with the chronic migraines and depression that I need to accept as part of myself that's not going anywhere any time soon. And my mom had the fastest, easiest experience with breast cancer humanly possible. I don't think we've ever cried so much as we went around the table and did our "I'm thankful for..."s.
My babycousin (the adoptee) is almost one and friggin adorable. My parents still have this plastic horse on wheels that was my favorite 1st birthday present. I found it in their basement, Lysoled the hell out of it, and brought it up to see if Babycousin wanted to try it out. She loved it and I love that she loved it. Maternal instincts creeping in, biology and all that...raising the next generation with my own experience...someone please start singing "Circle of Life."

I never wrote about my business taking off over the holiday season, money coming in for the first time in a substantial way, paying down the credit card I pretend doesn't exist from a few years back, seeing 800 shop views in an hour, front page, treasury after treasury, hard work paying off.

I never wrote about The Ritalin Experiment. As happens every year, fall showed up and so did a general feeling of gloom and constant exhaustion. My psychiatrist thought I'd do well on a "stimulant" meaning Ritalin. It was a good thought. Unfortunately, I had a paradoxical reaction and it took me two weeks to realize my total lack of desire to do anything and deep dark depression were a result of the drugs and not just a part of me I deserved (isn't depression fun?)

I never wrote about my mom's surgery. Breast cancer reconstruction stuff. The last of it. She was getting back to her negative fussy ways, but then about 24 hours before going under, she saw her therapist and POOF! back to positive thinking. Amazing.

I never wrote about the ovarian cyst I got the day before my mom's surgery. I ended up driving myself to the ER in agony, getting probed by nice people with creepy machines and dumb people with nice drugs and then missing the entire  time my mom was in the hospital. Not ok. Ok with my mom (who was wonderful about it) but not with me. I felt guilty, like somehow I'd made myself sick so this would be about me instead of her. They got a nice clear view of the cyst in the sonogram, so if I did somehow give myself the damn thing, I've gotten good at materializing my psychosomatic symptoms.

But I never wrote about the boy, either.
At first I thought he was gay. I misinterpreted something as him flirting with another guy, and I must have thought he said something else early on, too, because I filed him away as "gay" very quickly in a way I don't normally do. So he was my fun new friend I didn't see that much. He was there for Halloween, we hung out for a good chunk of the night as I got consistently more and more wasted. He was gone by the time I was almost ready to follow home the snarky stranger.
I think Halloween was when I first thought, "Wait, why exactly did I think he was gay?" Went from "Too bad he's gay" to "I don't think he's gay..."

Apparently I'm extremely dense. Aural Girl is amazed at my obliviousness, and Possible Boy knew exactly who I was talking about because "it's just that obvious that he likes you."
Still, I wasn't sure until he was talking about Neighbor Guy basically trying to rape him no matter how many times he said "I'm. Not. Gay." (Glad to hear Neighbor Guy is sticking to his M.O., falling for straight boys and  then not taking "no" for an answer.)

I had to reevaluate The Boy. Because now he could actually be a Boy. What? Further investigation was in order, but I saw him at most once a week at the bar. We didn't actually hang out until right before he left for the east coast for a month-long winter break vacation.
But.
The day we hung out, we were together from 11 AM to 11 PM and had a really fantastic time. Driving around in freezing rain and an estate sale and making music and cooking and more music and being awkward and then just a little bit of smooch on my way out the door. He followed me out to my car in his t-shirt, oblivious to the cold in our mutual dazed bewilderment. The freezing rain slush had turned to snow. After our final bits of giddy and apprehensive, I managed a cool "See you in a month," and drove home.

And then he flew away. To a Carolina. For a month. He won't be back until mid-January.

I wished for an excuse to write love letters, but at this point it would be for the storyline and the love of myself.
But it turns out, he tends to be awake at stupid hours of the night creating things. Whether it's a bad habit or just my natural clock, I've been  indulging my nocturnal tendencies and spending hours and hours (like, a good 5 hours a night) "talking" to him on Facebook chat.

I'm not quite sure he's real. I suppose there's enough about him that is just completely his that he can't be purely a narcissistic projection of myself, and there's so much I still don't know. But so much of what I'm finding out seems to fit very well. I'm not getting completely lost and stupid because, via instant messages, he seems more like a concept than a real  person. We'll see when he gets back. As long as he keeps making me feel better about myself instead of worse, he's an improvement on most of my past emotionally-involved Boys and I"ll gladly live in fluttery-but-cautiously-optimistic limbo for a few more weeks.

[No code name yet because I haven't decided on one.]

More Pain, More Thoughts

My brand of  love scares away boys and sets back feminism 40 years. Writing about love is gauche now, anyway. That's why I get migraines--to give me something to write about. It's a through-line to my story, a  regular source of conflict, and a free pass to be self-involved.
Free pass is putting it nicely.
Screaming internal distraction that makes it hard to notice much else. Unless I lose myself in something. Today I spent a very long time figuring out how much something listed in an obscure currency decades ago would cost today (as in, today dollars versus then shekels, not how much it's actually worth today). I edited  photos, tried to write product descriptions, got frustrated and heard my brain fizzling, and finally settled in to watch a gazillion episodes of Twin Peaks.
I wanted to be functional this weekend. I even saved my shots this week and drugged up Saturday morning. No good. Pain pain pain since Friday. Before that, too? I don't really remember when this bout started. It's been a bad one. HDS leaves tomorrow and her husband and friend came to pick her up. I wanted to have a nice goodbye weekend. I want to feel well enough to know want.

I'm supposed to go out to see my mom on Tuesday and maybe go shopping with her. It's been less than seven weeks since she was diagnosed with cancer. Now she may be fine to drive and shop again. That's amazing. She's so lucky and we're so lucky and everything has been so amazing. But there's a part of me that also struggles with her getting better and better while I have no real "better" in sight. Mine isn't scary, mine can't kill me. That's huge. But there are no walks, no ribbons, no support groups, no t-shirts, no awareness months, no product lines, and no foreseeable relief for my migraines. I will never be a "survivor," and that's appropriate because there was never any threat. Cancer is something you survive. But migraines are something you suffer.

I don't expect life to be easy, I just feel the things that aren't.

Everything is true at the same time, Reality is the version accepted by the majority.

Pad My Walls

I've got the crazies tonight. The pain was mostly gone today, but all the other fucked up shit diminutively classified as "aura" rendered me insane. It's so strange that when I get like this I can write. I can do a number of other random things quite well, too. Hopefully tomorrow I won't discover that I destroyed, offended, or bankrupted anyone, but I think I got a lot of work done. Walking the dog, I was ready to chainsaw the trees after 30 seconds of the cicadas. I hate the fucking cicadas. Crickets chirp; cicadas scream like electronics, but they ebb and swell so you can't forget they're there, vibrating at the frequency of your skull.

So I thought I was hungry. I'd been munching snap peas all afternoon, but perhaps red meat would cure my homicidal crankiness. I browned ground beef, planning to add one of the Trader Joe's Indian eggplant pouch things as an instant, no-thought sauce, but then I found a can of ranchero something soup with a recipe that sounded good and we had all the ingredients. So instead of three minutes and my nice fake Indian weird beef thing, it was 30 minutes for my fake Mexican weird beef thing. When it was done, I opened the oven and grabbed at the metal without thinking--no oven mitt. I can write but I can't use a stove.
Oven hot. No touch. Four-year-olds understand this. I'm alternating typing and icing my pointer finger.

Possible Boy and I had talked about seeing a movie tonight. At some point this afternoon I considered inviting him over to watch a movie, or doing some quiet but still social activity with him. Then I stand up and everything is wooziness and I try doing basic household crap and realize how scary I look. I don't want to hide all the time and only see friends when I'm glowing, but the bad stuff is easier to ride out quietly at home where I don't have to consider the variables. I'm not sure how to maintain friendships this way, but tonight I'm curled up afraid of myself and still trying to figure out how to get back to my parents' house to help out as soon as possible.
Cancer trumps migraine. Cancer kills.

Pathological

Pathology report: lymph nodes all clear. No chemo necessary. Woohoo!

My mom had to have a second, though minor, surgery because her skin wasn't healing properly from the first surgery.

My dad has been by her side every possibly moment, bringing much of his work to the hospital and actually taking his years of accumulated time off. He has been an absolute super hero. Under normal circumstances, he likes doing as many things as physically possible. He's mellowed down some so that he can now wait in line without exploding, but he used to send each member of the family to stand in a different check-out line and then we'd all join whoever got to the counter first. If there were fewer lines than family members, my father would bounce back and forth between lines, check things out at the front, go back and shop some more or do whatever he found to keep himself occupied. The man couldn't stand still. As adults, my siblings and I refuse to participate in the efficient but rude multiline blitz.

I try to be there for my mom as often as I can so my dad and my brother don't have to. My dad hadn't cleared his work schedule to take my mom home after the unexpected second surgery so I planned to be there Tuesday and Wednesday. Thanks to the migraines and everything I've had to do to fight them, I'm no longer bothered by blood and IVs and all that, plus I'm female and not modest so I can help my mom get undressed and dressed.

Driving back and forth these past few weeks, I've somewhat abused my Torodol: nothing that will kill me, but a bit much for keeping it effective.

Tuesday, HDS stayed home from work because the inside of her head burned. I went to the hospital to find my mother quite chipper. She was walking around before they had her out of recovery and wanted real food as soon as the nurse could find her an unplanned turkey sandwich. Considering how much trouble she had with the anesthesia the first time, we were all pleasantly surprised.
Meanwhile, I took one of the alcohol wipes and bandaids laying around and gave myself another shot of Torodol. My sunglasses never came off.
My mom, who had surgery, was doing fine and better all the time. I, who had all my parts intact, got worse and worse. Sound, smells, all the usuals but no amount of caffeine or drugs seemed to stave them off.
I wigged out. There was nowhere I could hide in the hospital that was dark or quiet. Everything buzzed and hummed and beeped. I'd find a dark hall or stairwell only to step in and activate motion censor fluorescent lights. It was light a bad nightmare. I curled up in a corner behind a doorway where at least no one was around and cried and cried because it hurt so much.

I cried because I felt like I had no right to my pain, here on a post-op hospital ward.
Mine can't kill me.
But my mom will get better. My mom will be a cancer survivor.

I went back to her room and sat in a chair in the dark part while my dad tried to fuss over making it darker for me. I'm not sure what I said or did at that point but I figured I'd just sleep in the corner until the pain blew over. Then my mom said my dad and brother were going to both drive me home so my car would be back at my house and that was what she wanted and they would deal with Wednesday because I needed to take care of myself.

Lots of gratitude and I was home. I give my family a lot of credit for this one.

That night it stormed so loud the lightning woke me.

Ways to Help

My mom went home today. My dad has been with her since she had her surgery, sleeping in the chair beside her hospital bed. My parents can be infinitely annoying and occasional emotionally abusive, but they are pretty incredible.

Today is the first day since Tuesday I won't see my mother. I'm relieved. Starting tomorrow, much of her daily care will fall to my brother and me. He lives there for the summer, so he has less ability to escape. I have to remember it is not my job, that her friends can take up some of the slack.

Yesterday, while I was feeding her ice chips, my mom started complaining to me about one of her friends and went on her standard bitch-and-moan about her mother and one of her clients and other flawed people in her life. She's keeps checking to make sure she's not overburdening me with the physical stuff--repeats over and over I don't have to feed her or help her stand or poke at the bloody things unless I'm comfortable--but I've never been able to properly communicate how uncomfortable I am being her emotional support system, and now seems a cruel time to say something. I feel so backwards--help from her local adult daughter post-double mastectomy is a huge act of charity; therapeutic services have been assumed since I was 4. I never had to do the dishes or take out the trash, maybe I just got the emotional trash instead. And my parents still don't expect any sort of physical, visible work, but perhaps to them it's a greater burden to do something than to feel something. Not me.

I'll be back at their house tomorrow night and it will be emotionally draining, too, but it's emotionally draining sitting at my house.

The cicadas are loud again tonight. Crickets chirp, cicadas scream. The sound swells and ebbs in irregular waves. I never see them, but I hear them. They are monsters.

Not Real Sucky

Headline News on mute in my mother's hospital room has been nonstop coverage of Lindsay Lohan. I don't have to look up the spelling of her name online because I can look up and it's on the TV. Still.

There are four clear turkey baster bulbs attached to four clear tubes attached to the incisions in my mother's chest. The body tries to heal the wounds, sends blood and fluid, and something needs to be sucked out. The tubes are stretchy and need to be squeezed clear of blood clots. Then we have to empty the bulbs and measure the fluid.

I don't have to do any of this. I volunteered. I'm strangely good at it, except when I tried to feed her the applesauce and got more on her than in her. At least I thought to bring the applesauce. All natural, NOT chunky, no sugar added. My dad said she'd been really nauseous all day, and I'm an expert at nauseous. She has dry mouth, too, way worse than I ever did but at least I understand the feeling. Ice chips mixed with the apple sauce trumped everything the hospital tried to feed her. You'd think hospitals would know these kinds of things, but I suppose it's different for everyone. We're related, so I imagine our reactions are far more similar. Nausea requires cold. Cold and wet, but not clammy. I'll often run my wrists under cold water at rest stops to battle the car sickness. My mom was grateful and amazed that I knew to put ice chips on her wrists when she was at her wooziest. But with her, with Cancer, with life in general, there's so much beyond my and anyone's control. I want to say it's "nice" to be able to make her feel better in little ways for even a moment, but "nice" the wrong word. It's all I can do and I'll take it.

The past few days have been filled with heat waves and electrical storms and flash flooding. Our power went out three times in the last week, only once while it was raining. Driving to the hospital today traffic signals were out or blinking all over the place. Transformers 3 filmed in Chicago last weekend, with explosions and parachuting and fireballs. Tuesday HDS and I sat on the Wao Bao patio at State and Lake and heard a huge blast. Most people didn't even look up.

I feel like the world is getting more and more absurd. There's crazy shit all over and we have our far-fetched explanations because if you stop and really think about any of it, the whole universe is too insane to be real. My dreams make more sense than my awake. Nothing makes real sense, we just stretch and accept whatever gets put before us. We're incredibly flexible creatures. Turkey basting my mother's chest? Why not.

Staring at the Sun

My mom is being amazing. She's optimistic and rational and moved by all the support she's receiving. I'm so impressed. She was built for this. I very much wish she didn't have cancer and we're only a week into knowing it's there, but at least it's acting as the smack-in-the-face we all sometimes need to remember what it means to be alive.

I'm also completely freaked out and not sure what else to feel or think, so alive is a pretty good place to concentrate.

My mom just called to let me know she has breast cancer.

She just found out. It's apparently one of the least bad kinds and she sounds pretty positive about the whole thing. My response was "That sucks, I'm sorry, do you need anything? I love you."

She said she kept thinking, "Oh no, now my daughters have a mom who had breast cancer."
Maybe all our day-to-day negativity and pessimism is just a way of saving our hope and optimism for the big stuff. I always say about  my migraines, "it's not cancer and it can't kill me." Well, my mom has cancer. Maybe the distraught hasn't hit yet. Maybe today's just a day I'm accepting things. One foot is already in a dream. My mom has to have cancer to show her the meaning of life. That's how the story goes. We all learn things and understand things and hurt and cry and bloom. I've seen this movie. Now it's our turn to live it.

my little d has the big C

aaaaaaaaaand now my dog has a malignant mast cell tumor. Awesome. It's kind of on his back left side above his leg towards his butt. Sunday, I thought it was a cut. Then he wouldn't leave it alone, so I stuck the collar thing on him. It scabbed up but it still looked weird, so I brought him to the vet. And it's cancer. Awesome. Probably low-grade and as not-a-big-deal as possible when it comes to a cancerous tumor, but no one wants cancer, even the least bad form of cancer, and I love my dog very very very very very much and it's clearly bugging him and I just want to hold him and snuggle him all the time (since I found out like 5 hours ago).